Welcome

Welcome to our website! We are delighted that you are interested in our research. Our names are Prof. Dr. med. Elmar Gräßel, head of the Center for Medical Care Research, and Dr. rer. nat. Anna Pendergrass, head of the Family Care Research working group at the Center for Medical Care Research at the University Hospital Erlangen.

In over three decades of intensive research for and with informal caregivers (CGs) and affected persons (usually dementia), we have developed a variety of instruments and scales that have been designed to record important aspects of the lives of CGs and affected persons.

Our goals: 

  • We want to make these important and meaningful instruments available to a broad public—for noncommercial use without license fees.
  • Together, we would like to contribute to a better understanding of the situation of CGs in Germany and worldwide.

Information for Download: 

  • ! Those responsible for this website guarantee that all information provided during registration will be treated confidentially, in particular that it will not be passed on to third parties.
  • Downloading is permitted for non-commercial use only!
    1. This means specifically for the Erlangen Test of Activities of Daily Living and for the Erlangen Test of Activities of Daily Living in Persons for with Mild Dementia and Mild Cognitive Impairment:  (1) no immediate (direct) costs are incurred by the person being tested (billing as a health insurance benefit by third parties, e.g., doctors, is possible) and (2) the ETAM is not resold to third parties in any form as part of a larger test battery (e.g., as part of a larger, fee-based assessment instrument).
    2. This means specifically for the Burden Scale for Family Caregivers (Long and Short Version), Benefits of Being a Caregiver Scale, Mild Behavioral Impairment Scale, Item for Relationship Quality, and COPE 8: (1) the respondent completing the self-assessment tool incurs no immediate (direct) costs (billing as a health insurance benefit by third parties, e.g., doctors, is possible) and (2) the MBI-S is not resold to third parties in any form as part of a combined survey tool consisting of several survey instruments (e.g., as part of a larger, fee-based assessment tool).

You can find the various questionnaires and tests here:

You can find information about the benefits that caregivers experience from their caregiving activities here.
You can find information about the BBCS here.
You can find information about the construction and validation of the BBCS here.
You can find information about any research content obtained with the BBCS here.
You can register to download the scale here.

You can find information about the subjective burden in general here.
You can find information about the Burden Scale for Family Caregivers (BSFC) here (28 items).
You can find information about the Burden Scale for Family Caregivers short version (BSFC-s) here (10 items).
You can find information about any research content obtained with the BSFC and BSFC-s here.
You can find information for practitioners and doctors here.
You can register to download the scales here.

In process

You can find information about Activites of Daily Living here.
You can find information about the E-ADL here.
You can find information about the implementation of the E-ADL here.
You can find information about the construction and validation of the E-ADL here.
You can find information about any research content here.
You can register to download the test here.

You can find information about Activites of Daily Living here.
You can find information about the ETAM here.
You can find information about the implementation of the ETAM here.
You can find information about the construction and validation of the ETAM here.
You can find information about any research content here.
You can register to download the test here.

You can find information about Mild Behavioral Impairment (MBI) in general here.
You can find information about the MBI-S here.
You can find information about the construction and validation of the MBI-S here.
You can find information about any research content here.
You can register to download the scale here.

You can find all information about the item for assessing the quality of relationship between caregiver and care receiver here.
You can register to download the item here.